I probably should know better than to write a post late at night when I’m barely still awake and most of my thoughts are trending toward a rather negative vein. However, if I procrastinate (again) I’ll be posting late (again) and I’m tired of that trend, too. Just be aware there will be no sugar-coating….
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Somehow I had the mistaken impression that the child would be happy to return to school. We had a pretty good break (stomach flus aside) and she had asked when she would get to go to school again. GET to go. I thought that was a good sign. Uh…no.
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Written on
December 22, 2011 by
Gina
With J’s ‘improvements’ rapidly sliding down hill with the more time that passes between his last IVIG treatment and the present, we’re headed back down the road of massive meltdowns. Some of these are from our own doing. Case in point: We headed to a local large store for FREE Santa photos. We left early…
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Written on
November 29, 2011 by
Laurie
“It is good to have an end to journey toward; but it is the journey that matters in the end.” – Ursula K LeGuin I think we as parents of special needs understand this more than any other parents in the world. And even still, I fight this truth so much. As someone who’s good…
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We’ve hit another strange milestone. I think the child has learned how to lie. Not that she does it well, mind you. Previously she has been honest to a fault: Why is your brother crying? Because I hit him… Ah. Whether I liked the answer or not, at least I knew it was true. There…
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It was a relatively easy, but somewhat mind-numbing task to accommodate the child’s fixed preferences at her place setting. We don’t have quite enough “matching” flatware pieces to make it to the next dishwasher run. We tend to run out of teaspoons and case knives before plates and bowls. Over the years of combining two…
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Written on
October 6, 2011 by
Gina
Our family floats upon a cloud that delivers us from one crisis to another, sometimes playing bumper cars with the these crisis’ making them all blend into an amazing storm. I’m currently taking Certified Nursing Assistant classes for 5 hours per night (5 pm to 10pm) four nights a week for four weeks…not to mention…
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Written on
September 21, 2011 by
Kimberly
We figured out a long time ago that the child works best with routines, but with an occasional change of pace. I am also noticing that her apparently neuro-typical siblings can take advantage of routine to create chaos. Recently this has all appeared in the form of marathon bedtime routines that leave me ready to…
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Written on
September 14, 2011 by
Kimberly
Each new school year I hand over a “parent report” to the child’s new teacher. I wrote a blog post about it at my personal site a couple of years ago. I still think it is one of the most powerful tools in my special needs mom arsenal. Our report is about five pages long, though I’ve also…
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Written on
September 7, 2011 by
Kimberly
Ah…now I remember what takes the shine right off of back to school – back to homework. The child brought home her first ever second grade homework packet yesterday. Yeah, it didn’t go so well. It didn’t help that the homework arrived on a Tuesday. We have gymnastics right after school on Tuesday and don’t…
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