One of my best friends died last Friday. When I say friend, I don’t mean the “girlfriend” type of friend, more the “mom away from mom and grandmother type figure to my kids” kind of friend. Needless to say I am still reeling, as are all of the other people who knew her and loved…
Tag Archive: faith
My Angel
I knew that my body was giving everything to this little person growing inside me. I knew my life would never be the same; that our lives would never be the same. There were no words to express the happiness I knew my belly contained. I knew that this little being was my angel; my…
Waiting. And why it’s not so bad.
Raise your hand if you love to wait! Yeah, me neither. We spend lots of time waiting as parents with special needs kids. Waiting for things like doctor’s visits, referrals, our children’s therapies to take, results of the last lab work-up… For the past week we’ve been waiting with one of our daughters – waiting…
Tick tock
She fell asleep around 11 p.m. curled up with Tim in an armchair. When his foot began to throb and he needed to move, I pulled her onto my lap where she stayed until everyone went to bed. She slept through the end of “Despicable Me,” Dick Clark’s New Years Eve, clinking glasses, and excited cheers….
Smooth
Is it Saturday already? At times, this week has flown by. And at others, it has dragged on. Especially from 5 a.m. to about 11 a.m. on Tuesday morning when Tim had surgery on his foot. He plays in an adult soccer league and a week ago Tuesday, he got kicked in the foot. That…
Life as we know it
(reposted from the HennHouse) We’ve traded late night, happy hour dates for early morning mini conferences on raising spiritually healthy special needs kids. And we wouldn’t change a thing… We’ve traded Big Ten athletic events for seventh grade basketball tryouts. And we wouldn’t change a thing… We’ve traded philosophical discussions about politics and superpowers for…
Another Day, Another Diagnosis
Well, the day is almost here… I wish I was more excited, but it’s not THAT kind of day that we’ve been waiting for. For about a month now, we’ve been waiting for the July the 19th and Monday it will finally be here. This is the day we go to meet a new specialist….
The Beat Goes On
Is it just me, or is it odd the way your world just stops? The lab results, the diagnosis, and the hospitalizations … the realization that your perfect child is sick. The words taste bad in your mouth. Disease. Incurable. Rare. More questions than answers, more doubt than faith. You turn to the nearest window,…
Adaptable
When my Tim was in the academy, the cadets learned the importance of the nine core values. I would wager a bet that my Tim lived by those core values before he entered the academy, but having them drilled into his head and tying every action he took to one of those core values really…
Holidays
Over the last couple of years, we’ve found that while we still “do” the holidays, they look a little different for us. Where we hide the eggs is much more accessible. Our schedule is much more rigid as we keep to cathing and bowel management programs. Our meals are different as we adjust to allergies….
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