It was a relatively easy, but somewhat mind-numbing task to accommodate the child’s fixed preferences at her place setting. We don’t have quite enough “matching” flatware pieces to make it to the next dishwasher run. We tend to run out of teaspoons and case knives before plates and bowls. Over the years of combining two…
Tag Archive: acceptance
Special Exposure Wednesday – Big Blueberry Eyes
The first thing I noticed about Kayla is her big blueberry eyes. She has the biggest, bluest eyes I have ever seen. When she smiles, they just seem to light up. The fact that she has Down Syndrome just seems so secondary to who she is. Get to know Kayla more in her mom’s own…
We’re all Different…We’re all the Same
I’m writing a story with the child about the things that make us different from each other. I’m hoping this will be a soft entry to explaining her challenges and her triumphs over them in a way that is positive and yet open and honest. We’ve already talked about how even the people in our…
The Leap From Here to Acceptance
This week, I travel across the country to She Speaks, to press into my dream of writing a book. In the program, we’ll each share our story. This is part of mine – and I’m excited to share it with you, my fellow parents-in-the-trenches of special needs. ———————- “Curiosity is …another name for Hope.” ~Augustus…
I Know the Answer…Yet, I Ask Anyway
“Out of curiosity, how does his version of ESES (J’s form of epilepsy) compare to other kids you’ve seen with it?” This is my question to the neuropsychologist in the neurology department – designated specifically for epilepsy patients – that we met with yesterday. I don’t know why I ask these questions. We have our…
The ThiRd Rail
I’m still trying to figure out twitter. Can’t decide if it’s really useful for me or not. I’m trying out HootSuite which makes it more accessible, but still kind of overwhelming. Anyway last night as I was scrolling through the most recent tweets two words jumped out at me. Perhaps they would have jumped out…
We All Want the Same Things
I attended a gathering of parents with special needs children a couple of nights ago. There are a lot of things stirring in our community that bore discussion, but this phrase, spoken by one of the Dads there stuck in my head. We all want the same things… Our children may be different in various…
Happy Mother’s Day
When I became a mother in 2002, I truly felt transformed. The birth of my son was an empowering experience; primal and intense and painful, but giving birth to him and becoming a mother for the first was truly the most incredible moment in my life. Having my second child in 2003, at home, and…
Are Autism Adocates Doing It Right?
Is it possible that many parents NOT involved with Autism know that April is Autism Awareness? Do the circles run so wide as to pass ramblings of projects, awareness, the push for understanding and acceptance for those living with Autism or the discontent with influential sources’ lack of attention to the month trickle into groups…
It’s Official
After 5 years, innumberable doctor’s, therapist’s and specialist’s appointments, blood tests, x-rays, MRIs and on and on, Precious is no longer “developmentally delayed with a suspected developmental disability” but is officially developmentally disabled (aka ‘MR’) and we have the psychologist’s report to prove it. I wasn’t surprised when I heard the results, but I cried…
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