Special Needs Blog Directory

My son was born in 2007, he was diagnosed with Rubinstein Taybi Syndrome. Even without words, he is my teacher!

Hello, could you please add this blog to your list?
Thankyou

Count us in in your list. I don't know how much help I can be to others, having just begun the journey of special needs parenting myself, but I'm sure learning a lot from the rest of you!

I am a mom of 2 great children. The oldest, Emma is 9 and participates in the gifted program at school. Luke is 6 and was diagnosed with ADHD Nov. 2008. My blog chronicles our journey from the time I realized something more than a stubborn, willful personality was going on with my son. I talk of behavior modification, ADHD medication trials, struggles getting an IEP and other services at school, etc.

Hoping I can be on your list.

I have four children. One has neurofibromatosis type 1, another has Down Syndrome, and my daughter has learning disabilities and mild developmental delays.

I'm a 46 year old single mom of a 5 year old daughter named Leah Rose with Freeman Sheldon Syndrome aka Whistling Face Syndrome, with Arthrogryposis, and a repaired midline cleft in the soft palate.

I have a 3 1/2 year old son with Cerebral Palsy.
He is severely disabled and 100% tube fed.
I blog about life as we know it in our "differently abled" world.

I would like to be on your list. I have a 13 year old son with Williams syndrome. A genetic syndrome that effects all aspects: medical, physical, and mental. His is fairly mild. You can google it to get more info. He is a blessing to my husband and I.

Here is my blog about my 2.5 year old daughter. We are expecting a diagnosis of autism (or similar disorder) soon.

Hi, I'm Mae. My site is called Autism is Not the Boss. It focuses on tips to help parents prepare children with autism for a life of good choices, good relationships and great futures. Topics include educational and community inclusion, parenting, family fun and advocacy.

I would be honored if you'd add my son, Trevor's, blog to your site! I LOVE what you're doing! What a great great great resource & idea!

Thanks!

…danielle

I blog about homeschooling and special needs.

Aargh…forgot I was here! You can delete this

I have a special needs daughter who has cerebral palsy, is totally blind, and has endocrine issues and I homeschool all my kids…I have 4.

Hi! My husband and I parent a teenage(14) daughter and son (3) who has Down Syndrome. We would love to be added to your blog list.

Ops, The Farrells, not Farrekks

I am Maggie, a stay-at-home Mom blogging about my Walk on The Happy Side of Life with my 3 beautiful children; my 7-year-old daughter — "the old soul" — and my 4-year-old identical twin sons who happen to have been blessed with an extra 21st chromosome — "the boys" collectively. I blog 3 to 4 times per week about the happy influences in my life — most specifically, about my children, but also about the random happy thoughts that regularly occur to me as I go through this crazy SPECIAL life I've been gifted — as well as a weekly post specifically relating to Down syndrome (or special needs) awareness.

It's me, Maggie, again. Guess I misinterpreted the "Name" slot above to mean my name versus my blog's name. So, here I am again:

I am Maggie, a stay-at-home Mom blogging about my Walk on The Happy Side of Life with my 3 beautiful children; my 7-year-old daughter — "the old soul" — and my 4-year-old identical twin sons who happen to have been blessed with an extra 21st chromosome — "the boys" collectively. I blog 3 to 4 times per week about the happy influences in my life — most specifically, about my children, but also about the random happy thoughts that regularly occur to me as I go through this crazy SPECIAL life I've been gifted — as well as a weekly post specifically relating to Down syndrome (or special needs) awareness.

We would love to added to your SN blog directory. My blog is about my son & his challenges with Trach, Gtube, & Microtia.
Hope to learn more from the others here.

I would love to be added to your blog list. My blog is about life and homeschooling my son Noah who is 7 and has down syndrome. Thanks!

Please add my blog to your directory. Talks about raising my son with Down Syndrome and teaching him through games

My daughter Olivia has a mitochondrial disorder and a terminal form of epilepsy called Alpers' disease. She also suffered from a metabolic stroke.

My name is Candace. I am the mom of a wonderful, bubbly, happy go lucky, five yr old girl, who just happens to have spastic diplegic cerebral palsy. My blog is about my perspective on life as a mother of a very "special" child. Would love to meet other parents like me!

Hi! I'm an orthodox Jewish mother of five who blogs about the lessons and experiences of motherhood, particularly as they relate to my autistic son. I'd love to be included on your list.

I would love to be added to your board.
I'm the mom of a 24yo daughter w/spastic quadrapalegia cerebral palsy. I'm also the mom to 3 other children, all in their 20s and I'm the editor and researcher for a cerebral palsy support network called CPFamilyNetwork.org. I want to share this with all as I know, what incredibly valuable resources it contains. There's Survival Guides with Resources by State, and the Friends and Family Forum & more – Free Caregivers' Notebook.
The survival guides were almost 2 years in the making, I know, I did all the research and gathering!.. I'm glad to have found this board, and hope to be an active part of it and hope to share any valuable info and resources I can to help all.
Candice, we have SOOO much in common!
Hope to hear from you

I have recently started a blog about my daughter who developed bacterial meningitis at 7 weeks and is now 7 years old. She has bilateral cochlear implants and some learning difficulties. I would love if you would add my blog to your directory.

I would love to be added to your list. My blog is quite new. It shares our journey of our son with Down Syndrome and a heart defect.

My two year old daughter was diagnosed with Larsen's Syndrome at birth. I just started blogging about two months ago when we found out she needed a spinal fusion. I would love to be added to the list!

As a Mom of 3 children, two with special needs, I have had the opportunity and privilege to learn and experience with my children how each of them learns differently. My oldest son has introduced me to the joy and challenges of ADHD, Dyslexia and being Learning Disabled in Reading, Writing and Spelling. My daughter allows me to experience a typical child with an exceptional personality and nurturing spirit. While my youngest son has educated me on the many aspects of Down syndrome, Brain Injury, Apraxia, Dysphagia, Respiratory/Immune System Issues and Bi-Lateral Conductive Hearing Loss or as I like to say "Yada, yada, yada". None of the labels or issues my children deal with define who they are as people but they do shape how I work with, view and experience life with them. My journey with each of my children is filled with twists and turns and our day to day experiences lead us on a rollercoaster of emotions, challenges, excitement and joy but always, always a time to reflect on lessons learned, blessings received and knowledge gained through both our successes and our failures.

My blog includes both serious and amusing reflections on life, including raising an autistic son.

This is my son with Menkes disease page i have a lot of info on there and im planning to add a whole lot more once everything calms down over here. Please check it out!
God Bless
Corrine
Mommy to one beautiful boy

I am a mom of 3. My daughter Abby has cerebral palsey and will be 7 in Dec. She is on the same level as my 4 year old as far as development, kinda. I would love to hear from parents who are strugling with developmental problems and is there programs and camps out there for my daughter?

My blog is about live with Asperger's Syndrome, Early Onset Bipolar, and lots of regular chaos thrown in. I'm the mom to 4 children, two with special needs.

Read my illustrated book online about Tyler, my autistic son, and his journey to find his words. Dedicated to teachers and speech therapists who help our challenged children find their words.

Please add my blog to the list. Thanks

great resource of links and info. please add me too.

Great resource here.

Ben is six years old and has special needs. I write about what we have learned so far and hope to pass on good resources and information to other families.

Hi!

I'm new to blogging but am truly amazed and thrilled at the varied and helpful resources I am finding in the blogosphere that have been written by parents, like myself, with a special needs child. This is a wonderful portal to connect us together. THANK you! I look forward to exploring all the wisdom this community has to offer — hopefully I can impart a useful bit of knowledge or experience to others too.

I am very interested in the information you have to share. I have recently moved to Idaho and have lost my regular contacts. My 12 year son was diganoised March 2009 after many years of evaluations.

Hi, my name is Jon Singer and I have a 13-year-old daughter named Rebecca who has a rare genetic disorder that causes autistic tendencies. I have done a little blogging.

We started a foundation several years ago called The Drive for Rebecca (www.DriveForRebecca.org) and have been raising funds for advocacy, research and education and helped start a school called REED Academy (www.REEDAcademy.org) for children with Autism.

I recently finished the final draft of long work in progress, The Special Needs Parent Handbook, and would love to get additional parent feedback prior to going to press.

We have posted excerpts online (www.DriveForRebecca.org/specialneeds.htm) and have received many very positive comments. All proceeds from sales of the book will benefit Advocacy for All, our new initiative to provide free advocacy services to parents (for more information, please go to http://www.AdvocacyForAll.org).

Thanks for your thoughts and for helping to get out the word so we can make this guide as useful as possible.

Regards,

Jon

I am a college student with cerebral palsy and majoring in music therapy. The goal for my blog is to provide a resource, an education, an advocacy, and an insight for individuals affected by disability and those who care for and love them. Please consider adding me to your directory!

This is a story of overcoming the odds, putting trust in God, and the miracle of prayer. Our son, Elijah, was born in August of 2007. As a result of the oxygen deprivation that occured during his birth he spent his first three (agonizing) weeks in the hospital. When he was seven days old, we were told that Elijah had "severe brain damage" on both sides of his brain. At that moment we entered Elijahland and we've been here ever since. We're learning to live with the diagnoses Elijah has started to accumulate, but mostly we're grateful that God chose us to be his parents. It is truly a privilege to live in Elijahland with our handsome boy.

Please add "able2able… Your Special Needs Resource Directory" to your list. I am the mother of an amazing (now 4 year old) former 26 weeker with Down Syndrome and Autism and a high need typically developing almost 3 year old. I use research to try to find the best ways to deal with my daughter's complicated medical and behavioral needs. I created my blog to share Special Needs information I find on the Internet and also to help other parents of Special Needs children research their questions. Thank you for all you do!

I found an interactive software which helps to improve speech delayed problems and help build vocabulary on toddlers and young children with special needs. SeeMe SPEECH COACH has been very effective in the learning process of the children. I hope you give it a try and share it with others too.

Hi,
I am Mummy to 6 gorgeous children. Our 4th child was born with a Giant Congenital Nevus.
My blog shares our journey with our son and his treatment, as well as our life as a larger family.

I am mama to the "Bugg". He is 3 years old, no found diagnosis – just some findings – Septo-optic Dysplasia, Agenesis of the CC, and cortical visual impairment. He is non-verbal, has a wheelchair, and super cute curly hair. Visit us at our blog!

Can you add this blog to the special needs list? Thank you!

My blog is focused on homeschooling. I post many tips for the family homeschooling the child with dysgraphia. Which has helped me learn about other special needs and ways to help.