A few years ago, I fell in love with Signing Time. Jack was struggling to do much more than scream and I was increasingly frustrated. In a last ditch effort, I bought some DVDs and prayed that he would communicate with me. Slowly, he began to sign (things like more and done) and I felt…
Category Archives: Cerebral Palsy
Message for ALL Mom’s.. LOVE your kids, as if they were dying..
My day had started like any other, I was up at 5 packing lunches and backpacks, while trying to gulp down some coffee. I had an appointment at the office later, so I spent a few minutes standing in front of my closet perplexed and sighing. I looked in the mirror, briefly noting the major…
The Little Things
(The moving truck arrived so there are currently giant men and 497 boxes all over my house. Jack is in a corner screaming, and the dog peed on the floor. Such is life, eh? Needless to say, I’m reposting again. I PROMISE to write new stuff next week–you know, when I can feel my legs…
Holiday Carols Were Not Written for Us
I have to tell you, I am a huge sucker for holiday music. I love hearing it while I shop in the grocery and when I’m in the car. I dream of falling snow flakes and cozy fires. I actually know all the verses of many traditional hymns and get mad when artists don’t sing…
The Weary Woman..
The other day, I was overcome with emotion when I read what our friend Tammy said on her blog. (I’ll wait for you to come back…) This is such a sensitive topic. And one that is so often overlooked. We, regardless of situation, are still human. We have bad days. We have moments when we’re…
A Picture is Worth 1,000 Words
I’ve been a little slack at posting here. And today, I’m leaving you with a picture that I found and I want to adapt it to be my new mantra. The reason for the short post today is: I am currently in Wisconsin at the Institute for Patient and Family Centered Care conference. Only 1…
2 Years Later, How Do I feel?
Saturday marked the 2 year anniversary since Jillian was diagnosed with Cerebral Palsy. Those first few days were a blur. Focusing mostly on survival and knowledge. I would stay up super late (like 3am) to research on how I could “fix” this problem. Oh poor naive me. There is no “fix”. We just have to…
A Dream Is A Wish, Your Heart Makes
As parents, we all dream about what our children’s future will be like. Will they be happy? Will they get married? Will they make me a grandparent? I’m a dreamer, I always have been and I always will be. Lately, I’ve been having a lot of uncertainty about how Jillian will grow up. I’m not…
Post-IEP Discussion..
Wednesday was Jack’s IEP. Let me give you a little back story here. Jack’s “teacher” is a special education professional, who routinely wears fake hair and loud (loud isn’t the best adjective, but that’s all I can come up with) jumpers/sweaters. We refer to her as The General, because, quite frankly, that’s how she acts. Things…
Beginning to Loath The IEP
As special needs parents, we all find ourselves fighting for our children. (Even ‘typical’ parents do.) Adam and I often look at each other and comment that raising a special needs child shouldn’t be so hard. Why are there so many hoops to jump through? I’m tired just trying to keep up with the girls….
-
-
-
Please help change the lives of children and adults with special needs by spreading the word about how a Caboose Trailer Bike enables children and adults with a wide variety of disabilities to ride a bike for the first time ever.
If you know a family who could benefit from a Special Needs Bike, please let them know about the Caboose Trailer Bike. -
Want to connect with other special needs families? Come join the conversation at Blogfrog!
