Category Archives: Advocacy

Special Exposure Wednesday – World Down Syndrome Day

Today is World Down Syndrome Day. Spread the word! Share what you managed to capture this week. Please spread the comment love around. Thank you. *photo source

Weddings (and other such events)

Tomorrow my brother is getting married. In a quiet, small gathering. On a boat. At Disney World.   Now, while most people think this sounds romantic and lovely, I am a nervous wreck. My brother loves my son no matter what; however, if he decides to melt down or scream or narrate the entire event,…

My Three Cents

I didn’t feel like I was doing anything that extraordinary. I was doing what any good mom would do – trying my hardest to meet my children’s needs. There’s nothing here to pity or stand in awe of. It’s my child who is doing amazing things.

SPD Foundation Conference : International Symposium, Parent Workshop & Scientific Workgroup

This March 16th – 18th, the SPD Foundation is raising the bar of information available to parents, caregivers, therapists and physicians alike.  It’s the 14th International Symposium & Parent Workshop – Celebrating the 10th Anniversary of Sensory Processing Disorder Scientific Workgroup. This event is a ‘must attend’ for anyone involved with Sensory Processing disorder as…

End the R-Word

Too Much to Ask?

I had a meeting today with various members of our support team at school. I was trying to understand more about what is going on with the child’s writing, and basically learned nothing. “She’s doing fine. Yes, we acknowledge the struggle that writing, and indeed any expression of language is for her, but she’s meeting…

The Working Special Needs Mom…

So, how does one do it? Work and be Mom of the Medically Fragile? I need to know. I have a job interview. For a real, big girl job. In my field. At a large hospital. In a position that I, a few years ago, could have only dreamed about. I don’t really want to…

It’s POTTY TIME!!!!

A few years ago, I fell in love with Signing Time. Jack was struggling to do much more than scream and I was increasingly frustrated. In a last ditch effort, I bought some DVDs and prayed that he would communicate with me. Slowly, he began to sign (things like more and done) and I felt…

Message for ALL Mom’s.. LOVE your kids, as if they were dying..

My day had started like any other, I was up at 5 packing lunches and backpacks, while trying to gulp down some coffee. I had an appointment at the office later, so I spent a few minutes standing in front of my closet perplexed and sighing. I looked in the mirror, briefly noting the major…

Love is…

Love is…   Love is… a choice. Love is… knowing that without them, life would be empty and cold. Love is… sharing tears. Love is…worth fighting for. Love is…a knowing glance across a room. Love is… hurting for someone else. Love is… a familiar smell. Love is… something that is so easily tossed aside when…