Remember that list of caseworkers I told you about? Well, in my haste to count on all my fingers the number of caseworkers in our life, I neglected one very, VERY important caseworker / liaison we’ll call “Miss W, The Insurance Gal”. I could tell you a lot about “Miss W, The Insurance Gal”; give…
Category Archives: Health Care
What a Difference
I’ve had emotional whiplash all week. Grandma is visiting us this week. In case you don’t know the significance of those words you can read the worst part of it here. I’ve written about our struggles with her before. Turns out she does not have Alzheimers or dementia, per se, but the neurological damage she…
Speak NOW for Kids
Speak Now for Kids is an advocacy campaign of the National Association of Children’s Hospitals (N.A.C.H.) designed to engage child advocates in communicating with Congress before they cut funding for two key children’s health care programs: Medicaid, which funds health care coverage for one in three children in the U.S. and the Children’s Hospital Graduate…
The Anonymous Note, Part 2 And Those Kids Who Inspire Special Needs Moms
When my daughter Zoe was a toddler, she didn’t spend her days spreading out her toys and playing on our cool tile floor , or toddling around clutching her favorite doll with sticky juice hands like her big sister Olivia did. Instead, Zoe preferred to cuddle for comfort. Her speech didn’t develop until late so…
Our Children Will Grow Up: What Happens When A Vulnerable Population Becomes Even More Vulnerable?
At the end of our lives, we again become vulnerable. Charged to those with hands we hope are gentle, hearts we hope are warm. Family we wish…if all goes well. But what about our children? So many times we are focused on the now, as we should be, as we need to be…with the future…
I Went to the Dark Side…
I did it. I went to the Dark Side. All this time, I’ve been super vocal about the difference between being an advocate and being a…. well, you know. Yesterday, all that changed. (To read the whole drama, go here) I felt bad about it all day. I felt like I had worked so hard…
Ordinary Acts, Extraordinary Love
My girls have been in school a few weeks now, settling in- despite the challenges- two weeks of record Arizona heat, new classrooms, new schedules and the same old pressure to eat snack, eat lunch, drink water and do their best work. Two different schools, two different nurses offices’ stocked with medicine and strategically planned…
Waiting for Treatment
I want to write to you to tell you all the positives that can come from special needs, or rather, what we learn and how we grow as individuals raising children with special needs. I want to give inspiration rather than sorrow, the promise of a rainbow after the clouds. But I can’t. Not because…
V E N T I N G !!!
I try to keep my blog posts positive and informative … but today I must VENT. Thanks for listening!
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