Resources

November 30, 2008

  • Would you save a life if you could?

    When Peyton was diagnosed with Leukemia, one question that we were asked repeatedly was, "She needs a bone marrow transplant, right?"
    I would have to explain that bone marrow transplant is a last ditch effort, that you don't do it unless nothing else works, you don't WANT to do bone marrow transplant.  There's nothing easy, simple or positive about it. (…)

November 14, 2008

November 11, 2008

October 22, 2008

October 5, 2008

  • A port in the storm

    This weekend I am off to camp….with my kids….and my husband….and 20 other families dragging their bags of chemo and immune-suppressed kids into the wilderness. (…)

September 28, 2008

September 20, 2008

September 13, 2008

  • It's Time For A Contest!

    Just recently I had one of the bathrooms in our home remodeled to be accessible for my daughter, Ashley. (…)

September 12, 2008

September 5, 2008

  • My Secret For An "Ouch-Free" G-Tube

    Once upon a time we had a wonderful NICU nurse that let us in on a little secret before we took Jacqui home with her brand new G-Tube — a secret that would keep Jacqui's skin around her G-Tube protected and help to prevent granulation tissue from forming. (…)

August 24, 2008

  • This Just In: IEP Edition

    In my recent post Learning to Make Sense of an IEP, I asked for everyone to share their favorite resources on the topic of advocacy and special education. (…)

August 5, 2008

July 29, 2008

  • The Hush Hush Disability

    It is a longer post than I normally write, but for the sake of children -born and unborn- please take a few moments to read. (…)