New Years Day

Only three more days before the next infusion.

The first for the year.

She is really ready for this one.

December has been a tough month for Ivy and her ability to fight off infection, not so great.

She has so much more going on but I have been to… scared to talk about it much.

The Intragam has been going  well but our six month trial is almost over and things are up in the air until we have review with the immunologist.

The Australian National Blood Authority became very strict about who receives the IVIG in about March last year. What should have been an easy application turned into a nightmare of denial after denial. Finally with a letter to our member of Parliament, an appeal from our paed and an amazing petition, signed by almost 2000 people in just over 48 hours, Ivy was given the trial of six months.

Now that time is up.

I am really frightened that a continuation will be denied.

To go back to where we were just four months ago seems devastating and wrong and the honest truth is, I’m not sure I have it in me to go another year like the last.

That’s not true.

I could do it again but I don’t want to and I’m sure the little girl doesn’t want to either.

I don’t want to tackle constant and overwhelming illness and hospitalisation.

I don’t want to watch my baby go through all of that again.

My family either.

I want 2009 to be a great year for all of us and so as we herald the new year I am hopeful for a good start.

Also blogging at Three Ring Circus

Bringing up seven kids has led to in depth knowledge of asthma, autism, fetal alcohol syndrome and drug induced developmental delay, immune deficiency and autoimmune disease, ectodermal dysplasia, neonatal death and cardiac defect. Despite all of that, I didn't know I was about to start the ride of my life with the illness of my youngest daughter, Ivy.

TiffandIvy

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