Comments on: Dads Can’t Do Everything, Even Though We Try

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By: Danette

Danette — Sun, 26 Oct 2008 00:43:16 +0000

Welcome, and thanks for sharing your story. My thoughts and prayers will be with your family, and I hope ya’ll are able to find some answers.

By: Kim Ayres

Kim Ayres — Sat, 25 Oct 2008 14:08:54 +0000

Hi Mike, welcome to 5MFSN and thanks for introducing Marissa. As a fellow father I appreciate the desperate need to feel we could do something to “fix” things over and above caring.

I look forward to more of your posts

By: Rickismom

Rickismom — Thu, 23 Oct 2008 21:52:43 +0000

Thank you for an interesting post. I hope you find the answers you need.

By: TiffandIvy

TiffandIvy — Thu, 23 Oct 2008 19:47:44 +0000

That was such an interesting post to read! Thank you.

By: Fielding J. Hurst

Fielding J. Hurst — Thu, 23 Oct 2008 18:21:58 +0000

Sorry you are having to go through all of this. I’m a dad too and on a lot of your post, I was thinking … been there, done that, got the t-shirt. My daugher was having 8 or so tonic clonic seizures her day at the peek. Now we have 1 every 3 or 4 months and even went a year and a half with none.

By: jollyholly

jollyholly — Thu, 23 Oct 2008 17:17:52 +0000

I’m very glad to hear you have already heard of PDS! Although I’m sorry it wasn’t the answer for you that it was for us.
God bless you in your continued search and daily living with your lovely daughter. And thank you for sharing your own unique story with us. It is such a joy to find community even among our differences.

By: Tammy and Parker

Tammy and Parker — Thu, 23 Oct 2008 16:36:07 +0000

Mike,

We are just as thrilled to have you and Marissa here with us too!

Excellent post.

By: Deborah

Deborah — Thu, 23 Oct 2008 16:34:50 +0000

Marissa is indeed very lucky to have such a great dad. My daughter Ashley, who is now 13 years old, also began having seizures as an infant. I adopted her at age 2, but in none of her earlier medical information, or since I brought her home, has any doctor found a reason for the seizures.

For the most part, they were controlled with several different medications (tegretol, dilantin, depakene) until puberty hit. then things got a little wacky again at that point. She is currently on 4 different meds for seizures (depakene, topamax, trileptal and keppra), and is down to having only 3-5 a week. I think the keppra is doing the best job, and I like that it doesn’t have the negative effects on her liver like the depakene can have.

I use to totally freak out whenever she had a seizure, but like most things, with time I have relaxed, and accepted that the seizures are just one of the things that makes Ashley Ashley.