Comments on: Getting Back on the (GFCF) Wagon

By: Adderall.

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By: Jen P

Jen P — Wed, 08 Oct 2008 01:48:16 +0000

It is crazy at the difference diet makes. Good poop is the first reason we stay casein free. No constipation make their fuses a little longer before they melt down. Gluten puts The Younger's hyperactivity into a tailspin and The Elder seems to lose his ability to use his words thus MY fuse gets shorter! I do believe gfcf is one of THE best decisions we have made for our family. May not work for all but to us it was a God send. We also buy a lot online. Amazon will even autoship your faves. we run out panada puffs too often. AND Kroger (if u hv one of those) have really beefed up their gluten free selection. We get rice sticks from the local asian food market for 99¢ to use for spaghetti and noodle soup. I personally think it tastes much better than the $3 alternatives. And don't forget your good ole fruits and veggies. The green ones don't go over well in our house though I think every child might have that aversion.

I just wish there were better cheese alternative. I do miss my cheese….sigh….

By: Mallory

Mallory — Mon, 06 Oct 2008 18:56:32 +0000

My name is Mallory West and I am a nutrition specialist at Nutricia North America and specialize in nutrition's role in ASDs. I just wanted to spread the word about a free educational webinar on GFCF diets given by Judy Converse (MPH, RD and LD). It takes place next Wednesday. If you are interested, follow this link to reserve your place: https://shsna.webex.com/ec0600l/eventcenter/enroll/register.do?siteurl=shsna&formId=0&formType=0&loadFlag=1&confId=278096700.

Best,
Mallory

By: Trish

Trish — Sat, 04 Oct 2008 01:19:41 +0000

Thanks for all the encouragement! I really feel like we are headed in the right direction; it just gets a bit difficult at times.

By: Ecki

Ecki — Fri, 03 Oct 2008 22:35:03 +0000

I've found I've had to buy in bulk for Kayla's preferred GFCF foods. Amazon.com used to carry a bunch of stuff, but now I can't seem to get the Tinkyada pasta there by the case anymore, so I get it from glutenfree.com, but they charge shipping. Still, it's cheaper than our overpriced health food store or driving 45 minutes to the large supermarket.

Kayla's school has been very good about her dietary restrictions. I make sure to send in her snacks daily and I send her GFCF muffins or brownies if they are having a class party so she doesn't feel left out while the other kids are having cupcakes. (not that she would notice or care what the other kids were eating)

Honestly, though we aren't doing GFCF for the behavioral/cognitive issues of autism. We were on a year and then off for six months, and there wasn't really much change in that department. The change we saw were in her poops, so that's why we are going back to GFCF (and limited soy, too, it's too hard to do GFCF AND no soy)

By: Julie @ A Celebration Of Our Journey

Julie @ A Celebration Of Our Journey — Fri, 03 Oct 2008 19:53:35 +0000

Best of luck to you!

I have to admit that we haven't the GFCF diet…but I've finally learned that my son NEEDS a picture schedule even when it doesn't seem like he needs it. When we stop using it he loses focus, seems to lose ability to focus and express himself, is much more rigid and will not follow adult directed activities. Wow! He'll go from having mild Autism to severe. We all need to do what works and stay on the wagon…whichever wagon that is!!

I'm wishing you the best of luck!
Julie

By: Melody

Melody — Fri, 03 Oct 2008 19:22:30 +0000

I am in the process of getting my boys on GFCF diet. I'm a bit overwhelmed at the process, but have a wonderful book/cookbook (and Melinda) guiding me.

I'll be posting about the book soon on 5M4SN.

Trish, best wishes on getting back on the wagon.

By: Becky

Becky — Fri, 03 Oct 2008 15:44:42 +0000

That has got to be one of the toughest things. I really hate that we cannot have regular access to more foods without Gluten and casin. I think it would do a world of good for all of us not only the kids. I hope all is getting better. You rock Trish!! The great mom you are!

By: Another Piece of the Puzzle » Fun Stuff On Friday

Another Piece of the Puzzle » Fun Stuff On Friday — Fri, 03 Oct 2008 14:27:45 +0000

[...] And today at 5 Minutes for Special Needs, I am talking about Getting Back on the (GFCF) Wagon. [...]

By: Shara

Shara — Fri, 03 Oct 2008 13:40:39 +0000

It is so hard to stay on the GFCF diet. When gas prices weren't astronomical, I was driving an hour a week (one way) to Whole Foods to pick up GF foods for my autistic son. I haven't been to WF in a while, and there are some smaller health food stores near-by. I wish we had more GF foods available in our area.