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February 1, 2010

And yet more special needs Mommy confessions

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• I have moments of absolutely insane worry that include things like, "If terrorists blow up our state, where am I going to get seizure medication?"

• I sneak omega-3 oil into Max's Wheatina and wheat germ into his chocolate pudding and when he looks suspicious I make it like everything is OK.

• I cannot stand it when I say, "He has cerebral palsy" and the other mom tilts her head and goes "Awwwww."

• I turn into the most obnoxiously pushy person on the entire planet when it comes to getting stuff Max needs, like appointments with busy doctors. Once, a lab messed up a blood draw and I called the office to complain and made them send a nurse to the house to redo it.

• I have been given several good memoirs having to do with kids who have disabilities and I never feel like reading them in my spare time because, well, that's my real life and I'm all about escapism.

• Sometimes I get resentful that I'm the one who deals with the doctors and therapists, never my husband, until I get a grip and realize how hands-on he is with the kids in other ways.

• I do more stuff for Max than I probably should and really need to step back and let him gain independence.

• I get a kick out of it when Max does naughty stuff, like when he purposefully pushed over a bottle of hot sauce the other night at dinner, because it's such an every-kid thing to do.

Ellen blogs daily at To The Max.

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Comments on And yet more special needs Mommy confessions »

February 1, 2010

tesyaa @ 12:18 pm

I occasionally think of my special needs 5 year old as a baby, but I rationalize that he would get treated like the baby anyway because he's the youngest of 6.

Lisa Pasquariello @ 1:34 pm

I hear ya. Love your honesty. I too get pushy..and umm people have tattled on me. Whenever I advocate for Joe..they say i'm rude, and sarcastic..(well ya…when you mix up pull ups for little swimmers ..and you supposedly have been running a camp for children with special needs some of whom are NOT toilet trained..you think would know the difference) I have had to be told in meetings that I am difficult.

I think all my years as a workaholic witch prepared me for all the times I wont take NO as an answer, and I have to knock on car windows to kick lazy yoga moms out of my handicapped spot at school drop off- of course, i also think its ok to drive with hot rollers in my hair ( to be removed before we arrive at school) because after all I have to get two of us completely ready for school each day, and supervise a typical 9 yo! L.O.L ! Suzanne

Stacie @ 5:53 pm

Love your honesty!

staying afloat @ 7:04 pm

I totally get the escapism. When I first started in the blogospere, I avoided all special needs blogs, and sometimes I'll take a multi-day vacation from them to read stuff that has nothing to do with me.

And the terrorist thing, me too. I learned that if there's a disaster, you're supposed to write your kid's most important info on their back with permanent marker because it won't get lost that way.

Finally, I think the pushy thing has actually been good for me. I was never that assertive (outside my family), and now my pushy-muscles are all developed for when I need them.

February 2, 2010

SoCoMom4James @ 3:52 am

" I do more stuff for Max than I probably should and really need to step back and let him gain independence."

Yup — I totally do this too with my son. It's good for me to watch how other people interact with him. It usually helps me re-evaluate what to expect from him, and strategize how to motivate him to stretch a bit more.

February 3, 2010

Marie @ 12:36 am

Great stuff…you make me chuckle because I can sooo relate!
Yeah, I was known as pushy long before Jack came along. I'd like to think I'm pushy with a little more grace these days!

Wani @ 2:40 pm

I'm an escaper too… why read a book about something I'm living through? I'd rather read something fluffy that allows me to ignore my life for just a little while. Is that so bad?

February 11, 2010

momwithSPECIAL[needs]kids @ 10:29 pm

We all need a break some time. But it is amazing the skills we learn or sharpen because of these wonderful children. What a better person I am for having mine.

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