Comments on: When it rains, it pours

By: chaotic joy

chaotic joy — Mon, 01 Sep 2008 14:22:21 +0000

It’s OK to be sad for a while. To grieve this new news because I know in the long run you will do what you need to do as you always have. You are a strong brave mama and I am praying for you.

By: Kristie

Kristie — Mon, 01 Sep 2008 00:07:18 +0000

Thank you for your kind words, prayers, and comments. Your support does my soul good.

I’m feeling much better today. I spent the day enjoying all my kids wonderful qualities and it was wonderful.

By: Tammy and Parker

Tammy and Parker — Sun, 31 Aug 2008 16:39:01 +0000

Kristie,

I’ve been thinking about you and your post since I read it Friday night.

First of all, I believe you are on strong Mama.

But you need to take your time to be sad and totally ticked off at the Universe.

Thank you for sharing your thoughts and feelings with us. Thank you for raising our awareness.

hugs.

By: danette

danette — Sat, 30 Aug 2008 21:22:02 +0000

((Hugs)) I had similar feelings when we started to suspect that our youngest had autism. When our older boys were dx’d I was sad but more than that I was relieved – everything was so hard with them and finally we knew why. But with Bitty when I started to realize that he was not only showing signs of autism but regressing, I was surprised at how deep the grief I felt was. Give yourself time to work through those feelings, and as you say, the sun will come peeking back out.

By: abunslife

abunslife — Sat, 30 Aug 2008 20:11:35 +0000

Shit. shit. shit. Why? I was crying that night too…..It’s just not fair. I’m so sorry. You are the BEST mommy for these children and YOU know that. No one else can raise them to be the best, self-confident children that they are already growing up to be. YOU and your HUSBAND can do it and they WILL succeed in life. hugs.

By: Susan (5 Minutes for Mom)

Susan (5 Minutes for Mom) — Sat, 30 Aug 2008 18:08:47 +0000

Kristie, my thoughts and prayers go out to you. I really cannot imagine what you must be going through. Do be gentle with yourself and give yourself some time to cry.

And as May said, at least we can be thankful that society is getting a bit better… and with sites like this, we will all help the world become a more accepting and understanding place.

Thank you so much for sharing your story. You are truly helping move our world forward in understanding.

By: May

May — Sat, 30 Aug 2008 15:23:44 +0000

I can understand you sadness, it is a part of accepting that our children are not, and most likely, will never be accepted in the big picture of “normal” how ever one may define that. I hope soon you can peace in it and know that it doesn’t mean their lives will be any different than they were yesterday , you will not love then any less now there is a name attached to their set of behaviors.

Luckily your children have been in a time where disabilities are lesser of a social stigma. My son , trached since he was 3 months old , goes out with us all the time and people rarely bat an eye at us – those who do simply don’t garner my attention any more.

Years ago I met a wonderful guy online whom I became friends with who had Tourette’s. He had girlfriends, moved in with roommates and went to collage for something crazy like bioengineering and astrophysics. He was so smart it sometimes hurt my head to talk too long to him , lol. Unfortunately I have lost touch with him but please try to see that while there is still much ignorance in the world about Tourette’s ( as well as many other disabilities) that it is not a sentence to a lesser life by any means.

By: Deborah

Deborah — Sat, 30 Aug 2008 14:53:30 +0000

I believe we all need our times to be sad. Thank you for your honesty, Kristie. I really prefer an honest post to a sugar-coated one. They help me more…

By: My welcomed unwelcome guest - Slacker-moms-r-us

My welcomed unwelcome guest - Slacker-moms-r-us — Sat, 30 Aug 2008 14:23:55 +0000

[...] I think Connor and Isabelle have Tourette Syndrome. You can read more about it over at 5 Minutes For Special Needs. [...]