Not Her Failure

I ran into a girl, actually now a young woman, whose path I have crossed many times through the years. Each time I see her, I leave with a heavier heart. While many people who meet her now would label her a failure, I believe the failure is not hers. Here is a post I wrote on my blog about her about 18 months ago. Unfortunately, seeing her this week I know nothing has gotten any better…

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She was eight years old when I first met her, and I didn’t need anyone to tell me that she had a diagnosis of Autism. She never spoke. She wouldn’t look anyone in the eyes. She bounced a ball ALL THE TIME, stopping only for a few hours sleep each night.

Her parents were well to do, intelligent people, although there seemed to be a bit of a disconnect between them. Dad talked of helping his daughter bathe and dress. He talked about having to sit on her just to cut her nails. He talked about the food battles and what a struggle it was to get her to eat something healthy. Mom talked about the things Dad did, and about how much she needed respite from the daily grind of raising her daughter.

Then a few years passed before I saw the girl again. She was now in the 7th grade. She had become slightly aggressive and still she bounced the ball all the time. Then came 8th grade. The girl was even more aggressive. She hurt several people at school, some of the people even requiring medical intervention. She had begun to speak, but the words were parrot-speak – “Pack your sh*t and leave”, “Who the h*ll do you think you are?”, and “Just leave me alone.”

Freshman year in high school has arrived. The aggression is out of control. Sexual activities are initiated frequently and in extremely inappropriate places. Escape tendencies have flourished. The school district, at least in this instance, has very little choice. The girl must be moved to a much more restrictive school placement – unfortunately a place where she will learn more than academics. The parents, probably disconnected permanently at this point, refuse to intervene. They could make a difference. They could change the school district’s approach. But they, along with the rest of us who are powerless to intervene, will watch their daughter descend even deeper into a place lacking the supports she needs.

The system and the family have failed this girl. It breaks my heart.

Deborah can be found writing here at 5MFSN every Wednesday, and can also be found at Pipecleaner Dreams.

In addition to her job as a computer engineer and her single parent responsibilities, Deborah is president of a state-wide family support group for families whose lives are touched by deafblindness, and is a tireless advocate for all people with disabilities. She writes at Pipe Cleaner Dreams and her writing has also been featured in local magazines and newspapers. Ashley’s story has also been chronicled in a book by Jonathan Mooney titled Short Bus Stories.
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6 Responses to Not Her Failure
  1. Marie
    December 9, 2009 | 6:10 pm

    And now breaks my heart too. I just wish everyone could understand what a difference they can make in their children’s lives. Parents can do so much. This is now heavy on my heart too.

  2. Territory Mom
    December 10, 2009 | 9:14 am

    I don’t want to fail my children.

  3. Barbara
    December 10, 2009 | 9:24 am

    While we perfectly parent our own it is so easy to judge others.

  4. Deborah
    December 10, 2009 | 1:27 pm

    Barbara, I doubt anyone of us who believe we ‘perfectly parent’ our own children, least of all me. One need only read my personal blog to understand that.

    Territory Mom, I don’t think there is any chance at all of you failing your children. You are an incredible parent.

    Marie, sometimes things that we parents view as not all that important can be incredibly important to our children. That’s why parenting, especially parenting a child with disabilities, is not for the weak :) None of us are perfect, but I do believe all our children are!

  5. Lisa
    December 10, 2009 | 4:04 pm

    That makes me so sad. Sometimes we fail our children without even knowing it.
    It is not easy, we all know that, however the more supports you put into place when your child is younger, the more you utilize your resources, the more you advocate , the more you educate others the easier it will be for you and your child in the long run.
    God bless
    xx

  6. Sara Evans
    December 10, 2009 | 8:18 pm

    Oh this just breaks my heart. The family obviously needed more support to learn how to cope. The poor girl. :(