Ian will be a year old in a couple of weeks.
I’ve been asked to write once a month about raising a son with Down syndrome. To be perfectly honest, this is going to be difficult for me. If I had been asked to write about my thoughts and experiences just a few months ago, I would have had a lot of things to say. If you visit my blog and scroll back through the first few months of Ian’s life, you can read about many of my struggles and feelings.
Ian’s Down syndrome was a surprise, completely unanticipated. More shocking than jumping into a cold river in springtime. I wrote and blogged and talked about Down syndrome, so much so that I just ran out of things to say on the subject.
But I can tell you lots about Ian. He’s started giggling every day when I get home. He laughs easily and heartily. He won’t stop squealing with delight when we go for walks in the evening, so loudly and continuously that it’s kind of embarrassing. He loves the pool and goes into a trance as he floats in his little blue tube, when he’s not splashing and laughing. He can’t crawl yet, but is somehow able to quickly roll across the living room floor in order to pull our cat’s tail. And he loves his big sister, even though she swipes his pacifier.
I could talk about how this past year has been a huge adjustment for our family, but if you’re visiting this website, you already know that. I could tell you about Ian’s health, his heart surgery, his hearing challenges, numerous visits to the countless doctors, but again, you know all that too.
So what can I say about raising a son with Down syndrome?
Ian, I’m glad you’re here. I count it my greatest privilege to be your dad.












I think you summed it up perfectly!
Oh, Tom. Talk about a simply beautiful post.
Ian is who we want to hear about and get to know. And the little sister, we want to hear all about her too.
But that last sentence? Well, that was just my favorite of all.
Awesome post Tom!
After all of the science, the sociology, the philosophy, the medicine, the tears, the anger, the fear, and the resolution, there is Ian. It’s a revelation that I, too remember reaching, and it changed everything. It wasn’t resignation, it was realization. The emergence of a person, a person who was there, all along, with no regard for my histrionics or hyperbole (or even my penchant for alliteration).
Priveleged, indeed.
Well Done.
*tears and goosebumps*
Thanks for sharing.
Great post, Tom
Yes, that is why this is such a great site. We can all ‘talk’ in shorthand and yet everybody understands.
Best wishes
Tom,
I have read a lot of your blog in the past and you sure have come a long way! I was also very excited to hear you would be one of the contibuting writers!
Tom, this is a perfect post. You’ve put a smile in my heart today.
Tom, beautiful post.
Ian is lucky to have such a great dad!
Nuff said
Isn’t it weird how we think Down Syndrome is going to pound in our heads forever and ever after the kids were born, and then one day you realize it has stopped?
Great post!
Love to see you through the words, Ian.
Thanks for the words, Tom.
It is refreshing to read of another Dad’s thoughts and feelings. As a new Dad of a DS child, I appreciate your sharing.