Comments on: Love and Praise for Parents of Medically Fragile Children

By: Renee Garcia

Renee Garcia — Sat, 19 Sep 2009 18:19:14 +0000

I hope your son feels better soon Laura, and thanks for the post!! I came down with a flu-like virus this week and called my doctor in a panic… not because of ME, but “what about my daughter?!” I could practically see the nurse rolling her eyes over the phone line. She didn’t KNOW my daughter of course. When the doctor heard that it was me calling he got me right in because if I DID have the swine flu, we would have to protect HER. It’s very scary. Thankfully for her it was just a really bad virus. Bleh. (And I STILL pray she doesn’t get it!) Thanks again for your post!

By: Tonggu Momma

Tonggu Momma — Sat, 19 Sep 2009 03:06:13 +0000

Very timely for me to read right now, since I am recovering from the H1N1 virus. (I have asthma and it’s been slow going.) Thinking of all the moms out there who parent medically fragile children, including my own mom.

By: Deana

Deana — Fri, 18 Sep 2009 22:18:44 +0000

I agree Tammy…why do people ask that? It takes me aback every time I hear it.

Thank you for this post Laura. I think parents of children with special needs, whether they have lowered immunity or not, understand how important it is for our more fragile kids to keep away from the germs. We had to take Max to a dental, and regular check-up this week. When we got there, the dental office let us wait in a conference room instead of the crawling waiting room, and our pediatrician’s office nurse wiped down the entire surface of the room before placing us. It helps to be around people who “get it”, whether that is in person, or online!

By: Barbara

Barbara — Fri, 18 Sep 2009 19:36:35 +0000

What a thoughtful post, Laura. Add my thoughts and God bless you all to hers.

By: Tammy and Parker

Tammy and Parker — Fri, 18 Sep 2009 17:19:25 +0000

I think the reason that the special needs that came with Parker have never been an issue is because the medically fragile part is so very overwhelming.

Parker has had more hospital stays, more surgeries, than I can even remember off the top of my head.

One of the most frightening, a right heart cath, will take place this Friday.

I don’t give a damn about the extra chromosome, I just want to keep my child alive.

And the lifespan questions. How can one parent even think to ask another how long they think their child may live….or when they will die?

Yet, they do. All. the. time.

By: Lisa

Lisa — Fri, 18 Sep 2009 16:47:03 +0000

Well written. so true.
Thinking of all you moms out there.
And we parents of children with stronger immune systems have to remember to keep our kids home if they are sick…even a cough and runny nose.

By: Deborah

Deborah — Fri, 18 Sep 2009 13:50:01 +0000

My 14 year old daughter is medically fragile. Since the day I adopted her 12 years ago, I have not slept through the night. Even on the very rare occasions that she sleeps all night, I am still up every couple of hours just to make sure she is still breathing. And the first thing I do each morning is stand beside her bed so I can hear her breaths…