Brave Hero and the Feeding Specialist

Most of us take our ability to eat for granted.

For those with feeding issues, eating can be something to fear. Think about it. Getting that snickers bar from your mouth to your stomach requires you to:

hold your breath…..actually swallow…..and protect your airway….. all at the same time.

Add the dislike of flavors and textures and eating also becomes something to dread.

Learning to eat takes Parker way out of his comfort zone. Because of his spirit and spunk and willingness to try even though it is hard, I refer to him as our Brave Hero.

Here our Brave Hero is accepting a taste of his flavored applesauce.

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Look at his hands. He’s been PLAYING in his food. This is HUGE. Simply HUGE in the progress of getting Parker to feed himself.

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This is about the time that my other kids would exclaim, “Hey!” “If we did that you’d have a cow!”

Uh. Oh. Sensory overload. Time to take a break while Mom performs her version of “Clap! Clap! Clap Your Hands!”

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Ahh…..basking in the warm glow of a job well done!

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You can find Tammy and Parker hanging out at their other blog: Praying For Parker

I am the mother of 5 wonderful kids. My youngest, Parker, is a medically fragile blessing with Down's Syndrome. I am @ParkerMama on Twitter.
Tammy and Parker
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20 Responses to Brave Hero and the Feeding Specialist
  1. Jen
    July 31, 2008 | 9:35 am

    My son went through two years of food therapy so I know what joy those “little” triumphs can be. I once sobbed with joy because he picked up a carrot and took a bite of it.

    Way to go Parker! You’re making your mama proud!

  2. Michelle and Elliot
    July 31, 2008 | 9:44 am

    Dealing here as well, Tammy! It does seem to help, if only a little bit, if I let Elliot “try” to feed himself, though. He managed some yogurt dipped in cracker crumbs at therapy last week. Huge too as we have strayed a little from only creamy texture to something with a bit more substance. You rock with your apple sauce, Parker! WTG!

  3. Maddy
    July 31, 2008 | 9:51 am

    Well done you! [both] We are still ‘playing’ with the same issues.

    ‘and for my next trick, we shall play flick ball with a pea,’……well maybe in an eon or two. Perhaps in a decade [or two] we might eat one! Yeah!

    Cheers

  4. Awesome Mom
    July 31, 2008 | 10:05 am

    I love his new hairdo!

    I fought hard to have Evan eat by mouth when he was an infant. I knew that if I stopped feeding him orally it would be harder later on when he was strong enough to eat all on his own. We didn’t have to worry about aspiration so that was a huge plus. Good luck with your feeding journey.

  5. Lori
    July 31, 2008 | 10:07 am

    Thanks for the post Tammy. I sometimes forget the struggles we had with Myah, because she is such a good eater now. It’s truly been a blessing to have her feed herself and enjoy her food, but it took some intense years of therapy and “tricks.” I will never miss tube feeding.

    Parker is such a sweetheart, I love the 3rd picture, he looks so content.

  6. Jaime
    July 31, 2008 | 10:10 am

    Good for Parker!!

    Isn’t it ironic to see parents chastising kids for playing in food while we are begging our kids to dip one little finger in?!

    Have you read the Food Chaining blog post comparing food to grasshoppers?

    http://cheriandlaura.blogspot.com/2008/06/chaining-proceed-with-caution.html

    Tyler has been licking several fresh fruits (grapes, peaches) for the last couple of weeks. HUGE for us!

    I’ve also found it helps to let Tyler (who is almost 2) stand up to eat. Strapping him in the high chair seems to make him feel more vulnerable. Of course, there are challenges to this approach and I know a lot of therapists discourage it, but it works for us.

  7. Melissa
    July 31, 2008 | 10:21 am

    WTG Parker! That is huge! We haven’t had the feeding troubles to the extent that you have, but it has been a struggle. I’m so glad to see our dear Brave Hero experimenting!

  8. candace
    July 31, 2008 | 11:19 am

    It makes me thankful now when my son plays in his food! Good job parker and keep up the good work. I am pulling for you.

  9. Debbie Yost
    July 31, 2008 | 12:07 pm

    Compared to Parker, Peanuts eating issues have been a walk in the park. It can be so stressful at times, for everyone! Way to go, Parker! I hope you really enjoy eating one day soon.

  10. Christine
    July 31, 2008 | 12:52 pm

    So did you take him and the high chair outside and hose them off after this therapy session.

    Thankfully, so far, John has been a pretty good eater. I let him feed himself solids, but haven’t ventured to let him feed himself the really messy stuff. Guess it’s time.

    As with everything else he’s overcome, I have no doubt, Parker will overcome these feeding issues as well.

    Slow and Steady Wins the Race!

  11. mommy~dearest
    July 31, 2008 | 1:58 pm

    Awesome pics, and awesome job Parker!

    My son has food issues too- celebrate those little triumphs because to us, they’re HUGE!

  12. Melody
    July 31, 2008 | 3:39 pm

    I hear applesauce has conditioning properties for skin and hair. That last photo rocks my world. :)

    We dealt with the same feeding issues with Wil. He still feels and sniffs his food before eating it at age 10, but eat it he does!

    Parker will be scarfing down a burger before you know it.

  13. Barbara
    July 31, 2008 | 4:07 pm

    Well done! Both of you!

  14. Katie
    July 31, 2008 | 5:14 pm

    I love how there’s a gob on his nose and his expressions and how clearly the best way to react to a sensory overload is to rub the applesauce in your hair. Man. He is so freaking ridiculously cuuuute!

  15. Nicole
    July 31, 2008 | 10:51 pm

    Parker we’re so proud of you! And Tammy you’re pretty cool too. ;)

  16. Susan (5 Minutes for Mom)
    July 31, 2008 | 11:24 pm

    Way to go Parker!!! He’s such a sweetie…

  17. PsychMamma
    July 31, 2008 | 11:42 pm

    Tammy –

    Thanks so much for posting about this. We’re just getting ready to start therapy with Jenna. It’s hard for people (even family and friends) to understand why Jenna won’t eat by mouth and what the big deal is with teaching her. “Why does she need therapy?” “It will just come.” Etc., etc. Breathing issues just make eating scary. Who wants to be afraid of choking every time something goes in your mouth? I’d stop eating too.

    Your post gave me hope for Jenna and shined a light of inspiration my way. Way to go Parker! I hope Jenna does as well.

  18. Amy of Bunny Rose Cottage
    August 1, 2008 | 6:23 pm

    It just makes me so happy to see Parky doing this! I know before long he will be enjoying the different foods and deciding what he likes and doesnt like. Playing in your food is so fun too :) You are awesome Parker!!! Keep it up sweetie, we are all rooting for you!

  19. Tricia
    August 3, 2008 | 2:41 pm

    Awesome to see how well Parker is doing. Oh Sensory overloads look out. But Parker Looks like he recovered well.

  20. Niksmom
    August 15, 2008 | 10:42 am

    WTG Parker! We have struggled with Nik and feeding for a few years now. He’s doing well in therapy and seems very interested. We recently discovered the absolute connection between his seizure meds and his stopping eating nearly two years ago! Just started weaning them (he’s been seizure-free for several months, thank God!) and can’t wait to see if his ability/desire to eat comes back. He’s still super sensitive about textures, though, so I expect it’ll still be a long road to get there.