Praying for Anissa...

AnissaTuesday afternoon, our dear friend and writer here at 5 Minutes for Special Needs, Anissa Mayhew, suffered a stroke. She is currently in the ICU.

We are praying and sending our love to Anissa, her three children, husband and family.

For more information, you can read our post for Anissa at 5 Minutes for Mom or visit Anissa's site Aiming Low.

July 1, 2009

Volume Control (and lack thereof)

Son ScreamingSome days, I swear I'm looking for the remote or the volume control.

And no, it's not for my TV, it is for my son.

My son who abhors loud noises; the one who in every movie we have ever seen in a theatre has to cover his ears for most of the movie. The one who hates the shrill sound of the fire drill at school.

THAT son.

When we are home, I hear him from every corner of the house. If I am standing at the front door, I can hear him yelling in the office. Granted, we do not live in a Taj Mahal or anything, but if you are in the office there is a fairly good chance that if the doorbell rings you will not hear it. He is loud, and not just in voice. Sometimes he feels the need to laugh at something he sees. His laugh is forced, and he feels the need to laugh loudly so you understand that he thinks what he is watching is funny. Almost like canned laughter, but louder.

He will scream in the car sitting right next to you if what you say he doesn't like, or he is scared of anything you say or see.

I don't understand.

I've tried talking to him. I've tried showing him by recording his voice what he sounds like. He doesn't care.

"I'm just being me, Mom!" he says.

I know that. I know that it is him, and it has not been easy to show him differently. He doesn't want to hear it.

He, apparently, just wants to hear the sound of his voice. He also wants the people two counties over to hear it too.

Pass the earplugs, please?

Also, am I the only one dealing with this? Are there other parents looking for the volume control in their children? Am I the ONLY one who is constantly shushing her child?

Am I?

Shash is trying every remote control in her house to find the one that will at the very least turn down the volume of her children so she can enjoy a quiet moment the family pool. Click over to Diary of a Crazed Mommy to read more about her life and her amazing family.

Filed under Day In And Day Out, Shash, WTH? by

Comments on Volume Control (and lack thereof) »

July 1, 2009

Barbara @ 1:47 pm

A reasonable request from any mother, Shash.

Has his own hearing been checked? Have you asked anyone working with him – OT or ST? Have you tried social stories? Then of course there's always the familiar rewards/natural consequences. Best of luck.

ShashK @ 11:46 pm

Yeah, had his hearing checked – all okay. Have tried social stories, but he is not able to apply them in real time. :( Rewards only make things harder, unfortunately, because he'll do a little something and then expect a reward so it kind of blows up in my face.

We'll keep trying though. Thanks!! :)

July 2, 2009

Susan (5 Minutes for Mom) @ 12:58 am

How frustrating! I would have a really hard time with that because I suffer from headaches. I can't even imagine.

I have no helpful suggestions at all… just a lot of sympathy.

I have a daughter who NEVER stops talking — seriously NEVER — and she is a loud talker and, sometimes, a yeller. She has no "disabilities"… she just wants to be heard… even when the house is peaceful. She does the loud laughter thing too. I think it's an attention-getter. She wants us to notice her over her younger, identical twin brothers who get a lot of attention b/c they're younger and have special needs. We are constantly telling her to repeat whatever she just said using her indoor voice. When she's actually talking directly to us, I find that whispering everything I say to her seems to tone her down a bit. But, mostly, I'm just learning to live with who she is as an individual.

Barbara @ 9:20 am

I hear you, Shashk, the rewards thing can really rebound badly. However the natural consequences of undesirable volume is being ignored until behavior changes. ?

I'm sure many mothers relate to your story – it's helpful to know we are not alone.

sharon @ 9:46 am

sure – my Aspie son (almost 9) doesn't like loud noises, but he sure can bring the noise! ;0) i shhh a lot too (i also have 5 & 6 yr old daughters – typical) – i think most moms do…it's our duty ;0)

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38 | Diary of a Crazed Mommy @ 2:29 pm

[...] week, at 5 Minutes for Special Needs, I talk about my son's broken volume control issues and request knowledge on the best earplugs. All The Cool Kids Are Doing [...]

July 3, 2009

Sara @ 12:10 pm

I have a 14 year old who was driving everyone mad with her loud and constant talking. My mom would say, "well at least she'll never get lost since we can hear her from miles away".

This past year her teacher came up with a fantastic solution that has worked for us! We call it the tube-a-loo. The official name is "Hear Myself Sound" from the Lake Shore Learning Store, (lakeshorelearning.com). It is shaped like an old fashioned telephone handset and is hollow. When you talk into it the sound goes directly back into your ear providing instant feedback. After a few months of us handing it to her to talk into every time her voice got too loud, she began to whisper!!!! You could also make one out of pvc pipe. I hope this works

July 4, 2009

Catherine Levy @ 6:43 pm

Yes, my 5 year old son has no sense of volume…so we had his hearing tested and he had amazing hearing. The problem was that he hears the background noises that you or I can tune out, so he is talking over them. He hears the water running through the taps, he hears the trucks on the highway way down the road from us, he hears the tick of the clock the birds chirping far away.
So we made a meter on the wall, we put up a "Thermometer type style meter" made of construction paper. Had a smiley face at the top, and someone covering their ears on the bottom, and a plain face in the middle…so then we put his picture where we wanted to have his volume be.

Hugs,
catherine
catlevy@eastlink.ca

July 5, 2009

Danette @ 12:39 am

I was nodding my head the whole time I read this… we get the same thing in stereo with our twin boys who have no sense of volume control, one of them in particular screams a LOT but they're both loud, especially with the hysterical laughter. They can be in their bedroom upstairs with the door shut, and we can be downstairs on the opposite side of the house and still hear them.

Obviously we have tried talking to them about it but they honestly don't realize how loud they are. "Stop screaming." "I'm not screaming." "Yes you are, you just screamed." "No I didn't."

Sometimes it helps to tell them to "whisper" because their whisper-voices are pretty much like average-volume for most people. But it's only a matter of time before they're back to breaking the sound barrier.

I wish I had some better suggestions… we just keep pointing it out to them hoping that over time they'll start to recognize themselves when they're being too loud.

September 28, 2009

Mary Jo O'Neill @ 6:46 pm

My child also lacks volume control. When speaking with one of her speech therapists today, she said she is still suffering from tonal processing. We have been doing the listening program for a long time, but she says we are not there yet.

Perhaps some auditory therapy would help.

October 22, 2009

Tracy @ 7:42 pm

Is this a twin thing? My 8 year old daughter, a B/G twin, cannot, absolutely cannot, control the volume of her voice. She will shout in my face if I am right in front of her. I had her hearing checked and it's perfect. Like Danette said, her whisper voice is like a normal person's regular voice. I'd like to try the Hear Myself Sound thing. I'm at wits end. Sometimes it's downright embarassing when she shouts personal information in the middle of the mall or WalMart.

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