Comments on: Whatever it Takes

By: Dawn @ Wherever He leads...

Dawn @ Wherever He leads... — Fri, 17 Apr 2009 14:28:59 +0000

Very well said! I am not a very assertive person, but it is amazing how that develops as my daughter gets older.

She cannot speak, so I have to speak for her. Although her doctors & therapists care about her, no one cares about her like her Dad and I do. I have no doubt that there will be many times in her life that I will need to be a “mama bear” for my daughter. I think God prepares you for that role one step at a time…thankfully.

By: Tammy and Parker

Tammy and Parker — Fri, 17 Apr 2009 00:01:38 +0000

Not taking no for an answer? You be my kinda Mama.

By: Barbara

Barbara — Thu, 16 Apr 2009 02:07:54 +0000

The hit-hard part for me was the ‘deluding’.

By: Alicia @ Experiencing Each Moment

Alicia @ Experiencing Each Moment — Wed, 15 Apr 2009 18:26:03 +0000

I feel that exact way when in IEP meetings. We’re gearing up for our tri-annual, and I feel lost. I don’t even feel like I know what to demand. It’s so hard. Thank you for sharing your experience. You have no idea how much it helps.

By: Catherine

Catherine — Wed, 15 Apr 2009 16:53:24 +0000

Thank you so much for telling your story, I can relate to being told to just “wait and see” or in your case “go home and love him”. I was even told it was all in my head, that our son was “playing us”. Plus, the Autism Assessment team we saw about 6-9 months ago told us that they wanted to wait and see. Wait and see for what??? Waiting and seeing wasn’t an option for me!! We have a follow up meeting with the Developmental clinic with one of the doctor’s who assessed my son. I don’t know how to get my son the help he needs, it seems that me being my children’s expert means squat and also me being trained in Early Childhood Education means squat too.
We take one day at a time here, but deep down I know my son and now possibly my 2 year old daughter have something on the spectrum. Just have to keep going to get them help, and the help we need as a family.

Thanks again,
Catherine
catlevy@eastlink.ca

By: Karin

Karin — Wed, 15 Apr 2009 16:34:00 +0000

“There are days when you trust your instincts and there are days you don’t know which end is up.”

Something that I think a lot of us can identify with. Thank you so much for sharing these bits of your story and what you’ve learned along the way.