Comments on: Acceptance

By: Olivia

Olivia — Wed, 04 Mar 2009 01:18:12 +0000

I can relate. I joined a club I didn't ask to belong, yet somehow when I am with the kids at Joshua's school I am also overwhelmed with a sense of hope. If their families are still kicking, so can we! :0) But I do wonder what my son will or will not do… what will he look like, will people know something is "different"… etc.

We are in the hospital again after being home for only 6 days. I love sharing my son's story and the miracle of his life, but I have days I just want "normal" again. I liked my false sense of control – however dilusional it was before our son was born!

But the Bigger part of me is so glad we have our son and he has helped me grow and learn so much. He is a blessing. Today, I need to be reminded of that blessing – God was faithful and he did remind me! He chose each of us because He thought we were the perfect fit for our children – how cool is that?

Thank you for your post! Being real and aware of your struggle. I keep a carepage for our son…www.carepages.com "JoshuaGrantOber". May God receive all the glory for my son's life!

Love, Olivia

By: Betty and Boo's Mommy

Betty and Boo's Mommy — Tue, 03 Mar 2009 22:13:18 +0000

We struggle with this a lot. I mean, A LOT. My husband moreso than me. (He's written two "guest posts" on my blog about this.) I'd like to say it's gotten better, and in some ways it has, but then there are days where it feels like we've never left the developmental pediatrician's office.

By: Deborah

Deborah — Tue, 03 Mar 2009 13:58:08 +0000

My children are all in their teens now, and I have moved past the uncomfortable feelings you describe. I think time is the reason – it did take me a long time, but now I see all my kids as just that – kids.

I learned not to judge or predict what unpleasant things the future could hold. Rather, I constantly focus my efforts on preparing them for the future – a future that they have a say in determining.

Parenting a child or children with disabilities, especially significant disabitities, is not for the weak of heart. But from what I have seen from everyone who has written and commented on this sight, none of you are weak. Perhaps you are still discovering your strength, but I bet one day you will look around and say, "Wow, I never knew just how strong I was."

By: Marya

Marya — Tue, 03 Mar 2009 12:35:53 +0000

I understand completely. I'm never completely over it and sometimes it hits me like a 2×4. I have three kids with special needs of one kind or another and it completely takes my breath away at times.

By: Awesome Mom

Awesome Mom — Tue, 03 Mar 2009 05:07:50 +0000

This is really hitting me in the face right now as my son turns five and is old enough for Kindergarten. I need to get on the ball and get him an IEP but I am rather scared to do it because I don't want him labeled. that has been the hardest part about his stroke. When he was little it was obviously physical that we had to work on but now that he is older we get to discover all the learning issues that are possible with his brain injury. I want him to grow into an independent adult so bad it hurts but I am not sure it will happen.

By: Heidi @ ggip

Heidi @ ggip — Tue, 03 Mar 2009 03:59:05 +0000

I think this is a very brave post. I'm so glad you did post it especially when I read all the comments.

I guess I'm not sure where I am at, but I do know that when I see a person with differences now, I do wonder whether my son will ever be able to be as independent as them, or as dependent, whatever the case may be.

I think it might also have something to do with whether this defines my identity or not.

By: Ellen S.

Ellen S. — Tue, 03 Mar 2009 01:41:25 +0000

Thank you so much for these replies, they're really comforting. Torina, I've had the same experience—only parents of kids with special needs really get what it's like to raise a child with special needs.

By: Maddy

Maddy — Tue, 03 Mar 2009 01:03:53 +0000

I'm not sure really. I know that my husband is much better with them in public than I am. I'm always anticipating disasters [which frequently don't materialize] and he seems oblivious, which probably makes for a better outcome.
Best wishes

By: The Gang's Momma

The Gang's Momma — Mon, 02 Mar 2009 23:56:58 +0000

I know just what you are feeling. We've only been home with our Li'l Empress for 5 months and the first 4 months were really pretty focused on adjusting to being home and getting her firmly attached to us all and settled in as a member of the Gang.

Now we're starting the rounds of evals with Early Intervention, our hospital's care program for kids with hearing loss, and so on. At the orientation meeting for that care program, it suddenly hit me that I was the mom of a child with special needs. It took me a couple days to let that settle in to my spirit.

It's been an overwhelming 6 weeks to say the least, getting all these evals, bloodwork, immunizations started, plus now services and therapies going. It makes me so grateful for support from places like this site and friends who have been thru both adoption and special needs.

By: Karin

Karin — Mon, 02 Mar 2009 22:05:15 +0000

Simply, yes.