Have a photo to share this week? Join us here for Special Exposure Wednesday!

January is National Birth Defects Prevention Month, National Blood Donor Month and National Migraine Awareness Month.

Did you know that Cyclic Vomiting Syndrome shares many similarities with migraines?

July 23, 2008

Working The Chewy Tube

Written by Tammy and Parker

Parker has been totally g-tube fed for the last year now. Before that Pediasure found it's way to Parker's belly via an ng-tube.

While this has (theoretically) solved the problem of getting enough calories a day into our guy, it also created a new issue.

How was Parker going to learn to eat. You know. The old fashioned way. By mouth.

Parker is a pro at taking in foods via the front of his mouth. But after that he spits it out because he can't move it from side to side with his tongue. And here is where his chewy tube comes in.

Now, before I go further, I need to make sure everyone understands that I am not a therapist. I am just showing you what we are doing at home with Parker. Consider this to be my liability claim.

We start out taking turns with the chewy tube. I tap the chewy tube up Parker's arm and then onto his cheek. It is very important not to ever surprise or force anything orally on your kid. I then tell Parker open and when he does (fingers crossed) I gently place the chewy tube inside the side of his mouth. And if all the planets happened to be aligned correctly that day, Parker then BITES DOWN on his chewy tube.

Photobucket

Then it is Parker's turn. He taps the chewy tube up his own arm (which he thinks is great goofs.) and on to his own cheek.

Photobucket

And if all goes well into his own mouth. And he then bites down.

IMG_1635

Can I get a big 'ole YA-HOO! here, please?

During the day I clip Parker's chewy tube to his shirt with a paci clip. Several times a day Parker and I take turns tapping the chewy tube up his arm and then into the side of his mouth in hopes of him biting down on it.

Not only are we teaching Parker how to get his tongue to cross his oral base line, we are teaching turn taking and have found that Parker has much, much less need to 'play' with his tongue to generate the oral stimulation he needs.

You can also find Tammy and Parker hanging out at their other blog: Praying For Parker

Filed under Blog, Day In And Day Out, Therapy by

It's Your Turn To Help...

If you found this post helpful, please click below to add it to Kirtsy or one of the other social bookmarking sites.

add to kirtsy
Thanks! Kirtsy is our Favorite. :)
Permalink Print Comment

Trackback URI

http://www.5minutesforspecialneeds.com/106/working-the-chewy-tube/trackback/

13 Comments on Working The Chewy Tube »

July 23, 2008

#1 - Ecki @ 12:18 pm

I love those chewy tubes. Although we use ours to keep things OUT of Kayla's mouth, as opposed to putting things in, LOL.

#2 - Melissa @ 12:46 pm

Those chewy tubes are great!! What a great idea to clip it to him.

#3 - Sandra @ 1:07 pm

He is just so adorable and I've told you that so many times LOL

#4 - Deborah @ 1:28 pm

My daughter had some similar issues. But I am proud to say that after 8 years of feeding therapy at our local Children's Hospital, she has happily graduated to real food eaten by mouth. For example, last Friday I took my kids to Pizza Hut for lunch. I ordered a medium cheese pizza for Ashley and me to share. Ashley ate 6 pieces and reluctantly let me have 2.

It's hard to believe that I used to think she would be tube fed her entire life!

#5 - Barbara @ 1:44 pm

YA-HOO! You are well-advised, and a fabuolous Mommy, Tammy.

#6 - Melody @ 2:10 pm

Work that chewy, dude! Loving the photos, and the clip is a great idea. Where were you years ago?

I so remember all the chewies we went through trying to get Wil to love anything in his mouth.

#7 - Marla @ 3:17 pm

Chewy tubes are awesome. M uses them for when her anxiety is very high.

#8 - killlashandra @ 3:31 pm

Wow, never heard of such a thing. What a neat device and it looks like it's working well. You definitely deserve a big YA-HOO!

#9 - Trish @ 3:55 pm

So glad he is making progress! Now if they just had something to convince a child to eat foods that are soft or mushy - my son is a crunchy/chewy only type of guy. :)

#10 - Melissa @ 5:47 pm

That is awesome! WTG Parker!

#11 - Amy of Bunny Rose Cottage @ 9:55 pm

Parker, you are awesome!! Tammy, it sounds to me like you KNOW just what you are doing!!! This is so excting :)

Hugs,
Amy

July 24, 2008

#12 - Michelle & Kayla @ 12:02 am

Looks like he's working the chewy tube just fine! We recently found Kayla's old tube (it had been packed away) and she's using it again. I think she has some oral issues going on as she likes to chew on anything she is holding, so I'm trying to encourage at least the chewy tube again!

#13 - Mrs. Mac @ 4:40 pm

Wow! Parker is making great progress. I just threw out our chewy-tube that Nathan used. He now eats non-stop ;) … Keep up the great work.

Leave a Comment

Subscribe without commenting