Written on
September 1, 2010 by
Deborah
It’s that time of year again – time to buy school supplies, Fall clothes, and healthy snacks for the school lunch box. It’s time to pay the exorbitant school fees for our children’s FREE education. And it’s time for parents of children with disabilities to see if they will face more battles with their school districts while trying to ensure their children receive an appropriate education.

I remember when my first child with disabilities entered the public school system. I was naïve and assumed everyone would love my child as much as I did, and would want to do everything they could to make her school experience a positive one. Along the way to high school where that youngest child now attends, I learned that her educational journey would not always be rainbows and unicorns.
If you could talk to that parent I was back then – the parent who trusted and believed in her educational system and its commitment to ALL children – what would you say? What would your advice be to new parent of children with disabilities, children who will start preschool or kindergarten this year?
Here’s my contribution to that parent, and please share yours in the comments:
Believe that your school district will care for your child. Believe they will always do what they can to ensure your child receives an appropriate education. But, document any issues – no matter how small. Prepare as if you will be one day be going to due process against your school district, but hope you never have to travel that path. That piece of advice, given to me so many years ago, made all the difference to my child. 99% of parents who take their school districts to due process lose. I prevailed at due process and my daughter did receive the education to which she was entitled because I followed that advice given to me over 13 years ago.
She loves the outside.
It is her favourite place to be.
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Also posting at Three Ring Circus.
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Max is a pretty social kid—but crowds? They freak him out.
This weekend, we were at an event and we had to take an outdoor group photo. It was a very, very large group. Max started wailing at the sight of everyone standing there. My husband was holding him, and even though he was talking to him soothingly and holding him tight, and I did the same, nothing helped. Max just kept wailing.
Clearly, it's sensory overload. The real mystery is that Max can be more than fine at an insanely noisy place like Chuck E. Cheese's. I mean, the din in that place gets to me and yet Max is a happy, happy camper when he's there.
I don't get it. I'm wondering if any of you have dealt with this, and what's helped your child?
Ellen blogs daily at ...
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"It took me four years to paint like Raphael, but a lifetime to paint like a child."~Pablo PicassoWelcome to Magic Marker Monday! If you haven't heard about Magic Marker Monday yet, click here and then hurry right back...
My 7-year-old recently decided she wanted to enter a couple of pictures in the youth art division of our county fair.
A lesson in graciousness ensued.
One picture won first place, and she was over the moon...
From the second hung an "Honorable Mention" ribbon.
"Look, this one has a ribbon too!" I chirpily called out as we spotted it.
Her shoulders slumped as she retreated into sulk-mode. "Every picture has that ribbon if it didn't win, Mommy. It means I lost. They didn't like my picture."
"Well, if you didn't win, that means there must have ...
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Recently, my husband applied for a new job. This job would have taken us out of our current situation (No family, no help, no children's hospital unless we drive 3 hours...one way) to another state. This state currently holds all of our family, and most of our friends. Convenient, eh?
So, he interviewed. It went well. All signs were pointing to packing boxes and putting up a "for sale" sign!
Until he came home from work and told me they had given the job to someone else.
The thing is, we need this.
Unfortunately, we live in a world that no longer values the loyalty of employees or what the needs of the family are. We are the family that probably spends the most money on insurance yearly. We didn't intend for that to be. It just is.
Years ago, a company would make sure that the family was happy and taken care of as ...
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Written on
August 27, 2010 by
LauraS
It was one of those weeks when the phone rang constantly, and each was a "crises" call. My 24 year old son Matthew, who has autism, was on a bad roll.
"Matthew lost his wallet, Matthew is calling a girl obsessively, Matthew called 911 because a girl hung up on him, Matthew needs this, Matthew needs that...."
You get the picture. The calls were really getting to me.
Then Tuesday night at 10:30 the phone rang again. I could see from the caller ID that it was Matthew, but I just didn't have the energy to answer it. He would have to leave a message, and whatever it was would have to wait until tomorrow.
But right as soon as I fell into bed, I bounced up again. I had to listen to the message. What if it was something serious?
So I picked up ...
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Written on
August 25, 2010 by
Deborah
****WARNING - HIGH YUCK FACTOR****
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There are no big bad wolves living here.
The PICC line is out and the port is in and after days of pain
Little Red felt up to an impromptu photo shoot.
Good for the both of us.
Got something to share?
Why don't you join in this Special Exposure Wednesday.
Please remember your comment love at each link you visit.
Also posting at Three Ring Circus.
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An old college friend called last week; she was coming to town, she had an extra ticket to see Billy Elliot on Saturday, and would I like to come? Y-E-S! My sweet husband watched the kids and I headed into New York. I'd seen the movie, I love dance performances, I figured the Broadway show would be completely enjoyable.
It was—the kid playing Billy (there's a rotating group of five) gave a fantastic performance. There was, of course, lots of amazing dancing. And singing. And a dead mother who kept cropping up to talk to Billy...and who kept distracting me. In one tearjerker scene, Billy reads out loud a letter his mother wrote to him, one that she wrote knowing that she was dying and would never see him grow up.
All of a sudden, I was thinking about ...
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"It took me four years to paint like Raphael, but a lifetime to paint like a child."~Pablo PicassoWelcome to Magic Marker Monday! If you haven't heard about Magic Marker Monday yet, click here and then hurry right back...
Another fun beach craft we finally decided to try out -- sand candles!
The kiddos dug the molds in the morning, lined them with shells and then chose the color and scent for their candles. We mixed the dye and the scent into the melted wax, then poured the wax into the molds and hung the wicks from plastic spoons resting sideways across the tops of the sand molds.
Then just before dinner, we dug out their candles, rinsed and dried them and then ate dinner by the light ...
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